FOR A GOOD CAUSE -- Images of the past
Amy R. Spurgeon
Struggle. Humiliation. Isolation. Shame. Frustration. Communication.
Art?
All of these influenced Newport Beach resident and volunteer Selly Jenny
when she developed a painting program called Memories in the Making for
Alzheimer’s patients and their caregivers more than 15 years ago.
“I started this because the world did not understand Alzheimer’s
patients,” said 72-year-old Jenny, whose mother, Mela Webber, died in
1985 of complications from the disease.
Webber lived out her days under constant supervision and spent much time
pacing and wandering around a nursing facility. Her dementia ultimately
robbed her from having any recognition of her daughter. The elderly woman
often felt depressed for not recognizing Jenny and scolded herself for
not being nicer to the “stranger.”
“Nobody at that point had any specific coping techniques with Alzheimer’s
patients,” Jenny said. “The best thing in those days was for me not to
come visit. That way, she didn’t grow upset.”
In 1985, frustrated by the way most Alzheimer’s patients were regarded,
Jenny drew from an artistic background to develop a nonverbal means of
communication that restored dignity to the afflicted.
Facilitators play a key role in the Memories in the Making program
through positive interaction and feedback with patients. Facilitators use
biographical facts to stir emotions in patients, who then create an image
on canvas. Facilitators may also use the power of smell to spark a memory
by spraying florals or spices near a participant.
“It is the validation of the individual by the art facilitator that
occurs over a blank piece of paper as it becomes a painting,” said Linda
Scheck, executive director of the Alzheimer’s Association of Orange
County. “It is the process that is the important part of Memories in the
Making.”The process and the product have helped the program become a
success, Jenny said.
Each year, a calendar comprising the artwork is made available for sale
to the public to help raise public awareness about Alzheimer’s disease. A
special Memories in the Making millennium edition information resource
and engagement calendar is currently available through the Orange County
Chapter.
Jenny and a handful of others are credited with the formation of the
Alzheimer’s Association Orange County Chapter. It is one of 200 chapters
nationwide that offers free services to the community, including
counseling, support, education, visiting volunteers, help line
consultation and guidance for families through the progression of the
disease.
“She has been a pioneer,” Scheck said of Jenny. “She is someone who has
done everything from rolling up her sleeves and placing centerpieces on
tables at fund-raising galas, to serving on the board of directors.”
Alzheimer’s disease is a progressive, degenerative disease that attacks
the brain, resulting in impaired memory, thinking and behavior. The
disease was first recognized in 1907 by Alois Alzheimer when he
discovered the hallmark plaques and tangles in the brain cells of a woman
who suffered from dementia.
Today, approximately 50,000 people in Orange County suffer from the
disease, according to Scheck.
Success from the Memories in the Making program has generated national
and international attention. Jenny was handpicked to speak at the World
Alzheimer’s Congress 2000 conference in Washington, D.C. in July. She
will be sharing success stories from her art program with physicians and
caregivers from around the world.
Despite the accolades and numerous awards the Alzheimer’s Association has
bestowed upon her, Jenny credits the patients and the life lessons they
have taught her.
“I have gotten so much back. It was the right time in my life to dedicate
myself to something I believed in,” Jenny said. “It is all about how
important communication is to the human being.”
FYI
MEMORIES
The Alzheimer’s Association of Orange County will present “An Evening of
Memories,” a gala fund-raising dinner and art auction that will honor
Maureen Reagan for her role as a national spokesperson for the
Alzheimer’s Association, at 6:30 p.m. Saturday at the Four Seasons Hotel
in Newport Beach.
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